Tuesday, October 6, 2015

Positivity



So here's the thing - I have a really sucky disease.  Well, sort of. I mean, it's not that bad in the grand scheme of things. (Despite what my mom thinks.)  A little girl I follow on FB just had a liver transplant, and they think the new liver is failing. Don't even get me started on all the gun violence in the world... especially Chicago and my hometown. Life could be worse.

Strangely enough, I seem to be the only person in my family with such a positive outlook. I say that loudly and proudly on my blog - 1, because most of my family doesn't read this, and 2, because I say it to their faces as well.  But do you know what sucks about being positive, even with a life-threatening disease? People think you're cray cray. It's true. They don't know what to do with me. Apparently I am not your typical kidney failure person.  I'm always out and about, I work full-time, and I am not on dialysis. Well not yet anyway.  T-minus one day until I go for the blood work that determines if I will have a port-thingy installed in my stomach for peritoneal dialysis (I really need to learn the correct medical terminology ;) )  Anyway, it appears from here on out, I will have blood work done every 2 weeks to check my kidney function. My GFR (you don't have to know what that means) is at 12.  One point lower means the port goes in. 12 or above - yay! no port!

Sure I have my off days, as anyone does, but I see no reason to let this disease define me. Do I want to have dialysis? No.
Can I do anything about it? Apparently not.
So it is what it is.
And I go on.
With a smile on my face.

Because hey check out these three awesome beings that I made. 

They are reason enough to stay positive.


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